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United States Advocacy and Support Resource for

Alzheimer’s Disease

 
 
 
 
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By clicking on the following links, you can access comprehensive information and resources regarding alzheimer’s disease in the United States of America.
 

Alzheimer's Disease
Mental Health America

2000 N. Beauregard Street, 6th Floor
Alexandria, Virginia 22311
Crisis Line: (800) 273-TALK (800-273-8255)
Phone: (703) 684-7722
Toll Free: (800) 969-6642
Fax: (703) 684-5968

Alzheimer's Foundation of America
322 Eighth Avenue, 7th Floor
New York, New York 10001
Phone: (646) 638-1542
Toll Free Helpline: (866) AFA-8484 (866-232-8484)
Fax: (646) 638-1546
Emil: info@alzfdn.org

Association for Frontotemporal Degeneration (AFTD)
Radnor Station Building #2, Suite 320
290 King of Prussia Road
Radnor, Pennsylvania 19087
Phone: (267) 514-7221
Toll Free Helpline: (866) 507-7222
Email: info@theaftd.org

Alzheimer's Drug Discovery Foundation
57 West 57th Street, Suite 904
New York, New York 10019
Phone: (212) 901-8000
Email: info@alzdiscovery.org

BrightFocus Foundation
22512 Gateway Center Drive
Clarksburg, Maryland 20871
Phone: (800) 437-2423
Fax: (301) 258-9454
Email: info@brightfocus.org

Family Caregiver Alliance - National Center on Caregiving
785 Market Street, Suite 750
San Francisco, California 94103
Toll Free: (800) 445-8106
Fax: 415-434-3508
Email: info@caregiver.org

John Douglas French Alzheimer's Foundation
11620 Wilshire Boulevard, Suite 270
Los Angeles, California 90025
Phone: (310) 445-4650
Contact form available on website

Note: The Mission of The John Douglas French Alzheimer’s Foundation is to serve as a venture catalyst to provide critical seed money for novel and promising Alzheimer’s research, generally not funded by the government or pharmaceuticals.

Lewy Body Dementia Association
912 Killian Hill Road, S.W.
Lilburn, Georgia 30047
National Office: (404) 935-6444
LBD Caregiver Link: (800) 539-9767
National Office Fax: (480) 422-5434
Contact form available on website

Caregiver Action Network
1130 Connecticut Ave NW, Suite 300
Washington, District of Columbia (DC) 20036
New phone: (202) 454-3970

Email: info@caregiveraction.org

Note: The mission of the Caregiver Action Network (CAN) is to promote resourcefulness and respect for the more than 65 million family caregivers across the country.

National Hospice and Palliative Care Organization
1731 King Street
Alexandria, Virginia 22314
Phone: (703) 837-1500
Solutions Center: (800) 646-6460
Fax: (703) 837-1233
Email: nhpco_info@nhpco.org

Older Adults and Mental Health
National Institute of Health
Science Writing, Press, and Dissemination Branch
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663

Toll Free: (866) 615-6464
TTY: (301) 443-8431
TTY Toll Free: (866) 415-8051
Available 8:30 am-5:00 pm ET, Monday through Friday
Online chat available 8:30 am-5:00 pm ET, Monday through Friday
Fax: (301) 443-4279
Email: nimhinfo@nih.gov

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, Connecticut 06810
Phone: (203) 744-0100
Voice Mail: (800) 999-NORD (800-999-6673)
Fax: (203) 798-2291
Email: orphan@rarediseases.org

Note: NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, Virginia 22003
Phone: (703) 256-2084
Fax: (703) 256-0541
Program Director: Jill Kagan, MPH
Email: jkagan@archrespite.org

Well Spouse Association
63 West Main Street, Suite H
Freehold, New Jersey 07728
Phone: (800) 838-0879
Fax: (732) 577-8644
Email: info@wellspouse.org

Contact form available on website

Eldercare Locator
Toll-Free: (800) 677-1116, 9:00 am-8:00 pm EST, Monday-Friday
For TDD/TTY access your local relay service or dial “711” for your relay operator and instruct them to connect you to the Eldercare Locator at (800) 677-1116.
Spanish-speaking information specialists available during normal operating hours.
Online chat available during normal operating hours.
Email: eldercarelocator@n4a.org

 
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Behavioral Health Treatment Services Locator

Behavioral Health Treatment Services Locator By entering your zip code at findtreatment.samhsa.gov, you can quickly find alcohol and drug abuse treatment or mental health treatment facilities in your area. This service is courtesy of the Substance Abuse and Mental Health Services Administration (SAMHSA) which works to "to improve the quality and availability of substance abuse prevention, alcohol and drug addiction treatment, and mental health services." (SAMHSA)

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